Scenario: Mental Health Crisis Data

[CatTruxillo]

This is a discussion forum for the activities in the Privacy and Security module of the Free SAS e-learning course, Responsible Innovation and Trustworthy AI.

Scenario: Mental Health Crisis Data

Consider This: 

What is the best way to balance the implicit consent of users in crisis with other potentially beneficial uses of data (which they likely will not have intentionally consented to but which can help them or others)?

Please share your ideas in this discussion. 

[Rogerio_Neiva]

Tough question. Although they gave the consent to use the data and as long as the date are anonymized and they can help other people, it seems OK. On the other hand, they are making money with my data but we also see this everyday in every online consent we give. If the product has no cost, you are the product.

[CarlosBarrera]

Being honest and transparent about intended use of data not only today, but also when change that intention in the future. It´s possible that some users wants to be compensated because use of his data.

[VernonHunte]

Clear easy-to-understand language & explanations on use of data, regular check-ins, and public reporting could help maintain trust would be importannt here. The properly formed and empowered independent ethics board could help oversee data use to align with ethical standards - again to build and reinforce trust.